DISABKIDS Chronic Generic Measure - DCGM-12 (short version)

1.1.1 Purpose
The short-form of the DISABKIDS condition generic measure (DCGM-12) deals with the same subject as its parental version. It provides a possibility of assessing health-related quality of life (HRQoL) in children and adolescents with different chronic health conditions in a more economic way. This short-form is derived from the same conceptual background as the DCGM-37.

1.1.2 Development
The short-form of the DISABKIDS condition generic module was derived from its parental version. In a first pragmatic step, it was decided to transfer the conceptual structure of the DCGM-37 as an framework for short-form development. This approach leads to some restrictions in item selection, that is to select the items in a structural representative way. Item selection for short-form development was performed using multivariate methods of test construction. Short-form development and analyses results of the final version of the short-form of the DCGM-37 will be reported in the future (Mühlan et al., in prep.).

1.1.3 Description of the instrument

Self- and proxy assessment
Two versions of the short-form of the DISABKIDS condition generic module are available: the self-report version (child version) and a proxy version (parents` version). Both versions of the short-form are available in six different languages: Dutch, English, French, German, Greek, and Swedish. A computer-assisted version of the paper-and-pencil version of the DISABKIDS chronic generic module is available as well, in six languages.

Scale structure and scoring
The short-form of the DISABKIDS chronic generic module consists of 12 Likert-scaled items assigned to the three domains of the parental version: mental, social and physical. The items can be combined to produce a total score. Table 1 describes the main content areas of the short-form.

Table 1: Domains and facets of the DISABKIDS chronic generic module included in the DISABKIDS chronic generic short-form

Table 1 describes the main content areas of the DISABKIDS short-form of the chronic generic measure. The DISABKIDS short-form has been developed in a strictly symmetric representative way. Thus every facet and every domain of its parental version (the DCGM-37) is represented with at least one item (see Table 2). The inclusion of all domains (mental, social, physical) was based on the conceptual model of three higher-order dimensions, following an age adopted and chronic generic diagnostic approach to HRQoL assessment. For a more indepth view on the concepts included please check the chapter 4.1 “DISABKIDS condition generic measure”.

Table 2: Items included in the sub-scales

1.1.4 Interpretation and reference values
The scores achieved on the DISABKIDS short-form represent a global screening assessment of the child’s or adolescent’s HRQoL from the respondent’s point of view (child/ proxy). Until the data from a standard sample is available for the DISABKIDS short-form, the results of the DISABKIDS field study (n = 1.152; see above) should be used as a preliminary reference for children and adolescents with chronic conditions. For the reference values (see chapter 6), the raw scores has been also transformed to a range of 0 to 100. The scores are shown for males and females, different age groups (8-12 and 13-16) and conditions.

1.1.5 Administration - suggested uses
The DISABKIDS short-form should be used whenever a short version is needed for economic reasons, e.g. in survey studies on quality of life in children with chronic conditions, in survey studies on the general child population with a filter asking for a chronic condition, or in studies where different modules (generic measures, chronic generic measure, conditions-specific measure, smileys) need to be combined so that comparisons can be made to children of a specific age.



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